The little-seen side of #SevereME: this is how I spend a lot of my time. While hubby is visiting his sister today, I have to stay home because my body is too exhausted today to handle leaving the house.

If I’d had more energy today, we’d stay about 45 minutes before I run out of energy for the day, and I’d have PEM the day after tomorrow.

At least Little EAP is joining me 🙂